The Mission of The Poland Syndrome Foundation:

The mission of the Poland Syndrome Foundation is to bring global recognition to Poland Syndrome. To those with Poland Syndrome the foundation gives; support, education, personal coaching, community and help with reconstructive surgery resources.

Consequently empowering people with Poland Syndrome to achieve their best life, as a result helping them take the steps to a constructive life full of knowledge, happiness and self love.


 
   
 
 

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About The Poland Syndrome Foundation:

The Poland Syndrome Foundation is a global organization dedicated to help improve the lives of children, their parents and men and woman with the birth defect called Poland Syndrome. The Poland Syndrome Foundation is able to help, through proceeds from "P.S. You are Loved" book sales, Body Bonding PS coaching, grants and site donations.

To join the site you may look around for the first few days at no cost, after that there is a small monthly fee to help The Poland Syndrome achieve these three things:

  • • Support others with PS with scolarships for PS coaching.
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  • • Help in the reconstruction process, for those who have no insurance coverage or the funds to cover the cost.
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  • • Keep the foundation website uptodate and running.

As you can see your small donation will make a big difference to people with Poland Syndrome.

If you can not cover the fee, plase contact Cynthia at psfoundation@rocketmail.com

You make a living by what you get. You make a life by what you give.
- Winston Churchill

All donation go 100% to the Foundation, please share what you can.

About the founder:

The founder Cynthia Sharp, like you, was born with Poland Syndrome.

She has had a challenging time finding others who had the birth defect and to find much information regarding how she got it or if there were other body/heath challenges. At one point she felt quite alone with her PS and had gone through many years of body shame and low self esteem. She woke up one day and said, let me see what I can do about this and the path to The Poland Syndrome Foundation was started.  

It has taken time, but with passion and her desire to help others, she has not given up. The idea came to her in 2007 and in 2012, she is well on her way to making it happen.  Since 2007 she started Body Bonding PS coaching, wrote a book called “P.S. You are Loved” and started a connection site for people with PS called Poland Syndrome Connection,all that effort lead to the foundation..

In 2011 Cynthia had a stroke, that put her back about a year from her goal of getting TPSF up and running. But if you know Cynthia you know that she just said this. “Yes a stroke was a definite challenge, but it gave me just one more reason to love my body, it’s still breathing.”

Cynthia, does most of the work on behalf of the Poland Sndrome Foundation herself and invites others to lead a hand in helping the foundation to be as supportive, educational and uplifting. If you would like to volunteer or have a suggestion that could help the foundation, please email Cynthia and share your idea or better yet reach her though the community.

What support the foundation needs at this time:

  • • Active PS citizens willing to share their time here on the site, helping and inspiring.
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  • • People to have PS events in their area.
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  • • Doctors who have a background with PS, in these areas reconstruction, genetics or other; willing to donate time, service and talent.
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  • • Medical facilities to make a contribution their services.
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  • • A law office willing to contribute its time in helping, The Poland Syndrome Foundation, reach its US tax exempt status.

Please contact Cynthia Sharp the founder with any help you can give: psfoundation@rocketmail.com